Lawn JE, Blencowe H, Waiswa P, Amouzou A, Mathers C, Hogan D, et al. Ending preventable stillbirths 2, Stillbirths: rates, risk factors and accelerations towards 2030. Lancet. 2016; doi:10.1016/S0140-6736(15)00837-5.
Google Scholar
MBRACE. Perinatal mortality surveillance report 2013. https://www.npeu.ox.ac.uk/mbrrace-uk/reports. Accessed 02 July 2015.
Scott J. Stillbirths: breaking the silence of a hidden grief. Lancet. 2011;377(9775):1386–8.
Article
PubMed
Google Scholar
Darmstadt GL. Stillbirths: missing from the family and from family health. Lancet. 2011;377(9777):1550–1.
Article
PubMed
Google Scholar
Goldenberg RL, McClure EM, Bhutta ZA, Belizan JM, Reddy UM, Rubens CE, et al. Lancet’s Stillbirths Series steering group. Stillbirths: the vision for 2020. Lancet. 2011;377(9779):1798–805.
Article
PubMed
Google Scholar
Frøen F, Friberg IK, Lawn JE, Butta ZA, Pattinson RC, Allanson ER, et al. Ending preventable stillbirths 1, Stillbirths: progress and unfinished buisness. Lancet. 2016; doi:10.1016/S0140-6736(15)00818-1.
Google Scholar
World Health Organization. The prevention and elimination of disrespect and abuse during facility-based childbirth. Geneva: World Health Organization; 2014.
Google Scholar
Starrs AM. Survival convergence: bringing maternal and newborn health together for 2015 and beyond. Lancet. 2014;384(9939):211–3.
Article
PubMed
Google Scholar
Sacks E, Kinney MV. Respectful maternal and newborn care: building a common adjenda (commentary). Reprod Health. 2015;12:46.
Article
PubMed Central
PubMed
Google Scholar
Hughes P, Riches S. Psychological aspects of perinatal loss. Curr Opinion Obstetr Gynecol. 2003;15(2):107–11.
Article
Google Scholar
Robson SJ, Leader LR, Bennett MJ, Dear KB. Do women’s perceptions of care at the time of unexplained stillbirth influence their wishes for management in subsequent pregnancy? An Internet-based empirical study. J Obstetr Gynaecol Res. 2010;36(1):108–14.
Article
Google Scholar
Murphy F, Merrell J. Negotiating the transition: caring for women through the experience of early miscarriage. J Clin Nurs. 2009;18(11):1583–91.
Article
PubMed
Google Scholar
Forrest GC, Standish E, Baum JD. Support after perinatal death: a study of support and counselling after perinatal bereavement. Br Med J. 1982;285(6353):1475–9.
Article
CAS
Google Scholar
When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington DC: The National Academies Press; 2003.
Murray JA, Terry DJ, Vance JC, Battistutta D, Connolly Y. Effects of a program of intervention on parental distress following infant death. Death Stud. 2000;24(4):275–305.
Article
CAS
PubMed
Google Scholar
Engler AJ, Lasker JN. Predictors of maternal grief in the year after a newborn death. Illness Crisis Loss. 2000;8(3):227–43.
Google Scholar
Gardner JM. Perinatal death: uncovering the needs of midwives and nurses and exploring helpful interventions in the United States, England, and Japan. J Transcult Nurs. 1999;10(2):120–30.
Article
CAS
PubMed
Google Scholar
Mitchell M. Preparing student midwives to care for bereaved parents. Nurse Educ Pract. 2005;5(2):78–83.
Article
PubMed
Google Scholar
McKenna L, Rolls C. Undergraduate midwifery students’ first experiences with stillbirth and neonatal death. Contemp Nurs. 2011;38(1-2):76–83.
Article
Google Scholar
Fenwick J, Jennings B, Downie J, Butt J, Okanaga M. Providing perinatal loss care: satisfying and dissatisfying aspects for midwives. Women Birth. 2007;20(4):153–60.
Article
PubMed
Google Scholar
Lee C. ‘She was a person, she was here’: The experience of late pregnancy loss in Australia. J Reprod Infant Psychol. 2012;30(1):62–76.
Article
Google Scholar
Fox R, Filial M, Porter H, Gill G. The management of late fetal death: a guide tocomprehensive care. BJOG. 1997;104(1):4–10.
Article
CAS
Google Scholar
Nuzum D, Meaney S, O’Donoghue K. The impact of stillbirth on consultant obstetrician gynaecologists: a qualitative study. BJOG. 2014;121(8):1020–8.
Article
CAS
PubMed
Google Scholar
Robertson MJ, Aldridge A, Curley AE. Provision of bereavement care in neonatal units in the United Kingdom. Pediatr Crit Care Med. 2011;12(3):e111–115.
Article
PubMed
Google Scholar
Heazell AE, McLaughlin MJ, Schmidt EB, Cox P, Flenady V, Khong TY, et al. A difficult conversation? The views and experiences of parents and professionals on the consent process for perinatal postmortem after stillbirth. BJOG. 2012;119(8):987–97.
Article
CAS
PubMed
Google Scholar
Flenady V, Wilson T. Support for mothers, fathers and families after perinatal death. Cochr Data Syst Rev. 2008;1:CD000452.
Google Scholar
Sandelowski M, Barroso J. Creating metasummaries of qualitative findings. Nurs Res. 2003;52(4):226–33.
Article
PubMed
Google Scholar
Cooke A, Smith D, Booth A. Beyond PICO: the SPIDER tool for qualitative evidence synthesis. Qual Health Res. 2012;22(10):1435–43.
Article
PubMed
Google Scholar
Cacciatore J, Bushfield S. Stillbirth: the mother’s experience and implications for improving care. J Soc Work End Life Palliat Care. 2007;3(3):59–79.
Article
PubMed
Google Scholar
Cacciatore J, Erlandsson K, Rådestad I. Fatherhood and suffering: a qualitative exploration of Swedish men’s experiences of care after the death of a baby. Int J Nurs Stud. 2013;50(5):664–70.
Article
CAS
PubMed
Google Scholar
Conry J, Prinsloo C. Mothers’ access to supportive hospital services after the loss of a baby through stillbirth or neonatal death. 2008.
Google Scholar
Dyson L, While A. The long shadow of Perinatal bereavement. Br J Community Nurs. 1998;3(9):432–9.
Article
Google Scholar
Erlandsson K, Lindgren H, Malm MC, Davidsson-Bremborg A, Radestad I. Mothers’ experiences of the time after the diagnosis of an intrauterine death until the induction of the delivery: a qualitative Internet-based study. J Obstet Gynaecol Res. 2011;37(11):1677–84.
Article
PubMed
Google Scholar
Erlandsson K, Saflund K, Wredling R, Radestad I. Support after stillbirth and its effect on parental grief over time. J Soc Work End Life Palliat Care. 2011;7(2-3):139–52.
Article
PubMed
Google Scholar
Gravensteen IK, Helgadóttir LB, Jacobsen E-M, Rådestad I, Sandset PM, Ekeberg Ø. Women’s experiences in relation to stillbirth and risk factors for long-term post-traumatic stress symptoms: a retrospective study. BMJ Open 2013;3(10):e003323.
Article
PubMed Central
PubMed
Google Scholar
Kavanaugh K, Hershberger P. Perinatal loss in low income african american parents. J Obstetr Gynaecol Neonatal Nurs. 2005;595–606(5):595–606.
Article
Google Scholar
Kelley MC, Trinidad SB. Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth-a qualitative analysis. BMC Pregnancy Childbirth. 2012;12:137.
Article
PubMed Central
PubMed
Google Scholar
McCreight BS. Perinatal loss: a qualitative study in Northern Ireland. Omega. 2008;57(1):1–19.
PubMed
Google Scholar
Nordlund E, Borjesson A, Cacciatore J, Pappas C, Randers I, Radestad I. When a baby dies: motherhood, psychosocial care and negative affect. Br J Midwifery. 2012;20(11):780–4.
Article
Google Scholar
O’Connell O VA, O’Donoghue. Provision of care at the time of stillbirth (abstract). First candle conference. 2012.
Pullen S, Golden MA, Cacciatore J. “I’ll never forget those cold words as long as I live”: parent perceptions of death notification for stillbirth. J Soc Work End Life Palliat Care. 2012;8(4):339–55.
Article
PubMed
Google Scholar
Radestad I. Stillbirth: care and long-term psychological effects. Br J Midwifery. 2001;9(8):474–506.
Article
Google Scholar
Radestad I, Nordin C, Steineck G, Sjogren B. Stillbirth is no longer managed as a nonevent: a nationwide study in Sweden. Birth. 1996;23(4):209–15.
Article
CAS
PubMed
Google Scholar
Rådestad I, Westerberg A, Ekholm A, Davidsson-Bremborg A, Erlandsson K. Evaluation of care after stillbirth in Sweden based on mothers’ gratitude. Br J Midwifery. 2011;19(10):646–52.
Article
Google Scholar
Richardson R. The voices of bereaved parents: survey feedback following perinatal death. J Paediatr Child Health. 2011;47 suppl 1:8–59.
Google Scholar
Saflund K, Sjogren B, Wredling R. The role of caregivers after a stillbirth: views and experiences of parents. Birth. 2004;31(2):132–7.
Article
PubMed
Google Scholar
Samuelsson M, Radestad I, Segesten K. A waste of life: fathers’ experience of losing a child before birth. Birth. 2001;28(2):124–30.
Article
CAS
PubMed
Google Scholar
Trulsson O, Radestad I. The silent child--mothers’ experiences before, during, and after stillbirth. Birth. 2004;31(3):189–95.
Article
PubMed
Google Scholar
Erlandsson K, Warland J, Cacciatore J, Radestad I. Seeing and holding a stillborn baby: mothers’ feelings in relation to how their babies were presented to them after birth--findings from an online questionnaire. Midwifery. 2013;29(3):246–50.
Article
PubMed
Google Scholar
Malacrida CA. Perinatal death: Helping parents find their way. J Fam Nurs. 1997;3(2):130–48.
Article
Google Scholar
Malm M-C, Rådestad I, Erlandsson K, Lindgren H. Waiting in no-man’s-land–Mothers’ experiences before the induction of labour after their baby has died in utero. Sex Reprod Healthc. 2011;2(2):51–5.
Article
PubMed
Google Scholar
Breeze AC, Statham H, Hackett GA, Jessop FA, Lees CC. Perinatal postmortems: what is important to parents and how do they decide? Birth. 2012;39(1):57–64.
Article
PubMed
Google Scholar
Flenady V, Davis L, Kirkwood E, Horey D. ISA conference 2010. Information and communication about autopsy for parents of stillborn infants (abstract). ISA conference 2010. 2010.
Google Scholar
Forhan M. Doing, being, and becoming: A family’s journey through perinatal loss. Am J Occup Ther. 2010;64(1):142–51.
Article
PubMed
Google Scholar
Wildsmith C. Reducing stillbirths: a parent’s perspective. Br J Midwifery. 2008;16(11):747.
Article
Google Scholar
Khong TY. Improving perinatal autopsy rates: who is counseling bereaved parents for autopsy consent? Birth. 1997;24(1):55–7.
Article
CAS
PubMed
Google Scholar
Cacciatore J. The unique experiences of women and their families after the death of a baby. Soc Work Health Care. 2010;49(2):134–48.
Article
PubMed
Google Scholar
Kerslake K, Parkinson S. Learning from loss: remembering Rachel and Thomas. Essentially MIDIRS. 2012;3(3):17–21.
Google Scholar
Hogue CJ SR. Experiences of support for women with stillbirth: report from the stillbirth collaborative research network follow up study (SCRNFS) (abstract). First candle conference. 2012.
Radestad I, Surkan PJ, Steineck G, Cnattingius S, Onelov E, Dickman PW. Long-term outcomes for mothers who have or have not held their stillborn baby. Midwifery. 2009;25(4):422–9.
Article
PubMed
Google Scholar
Surkan PJ, Radestad I, Cnattingius S, Steineck G, Dickman PW. Events after stillbirth in relation to maternal depressive symptoms: a brief report. Birth. 2008;35(2):153–7.
Article
PubMed
Google Scholar
Meaney SGS, Lutomski E, Nuzum D, O’Connell O, O’Donoghue K. What influences parents decisions to have perinatal autopsy? A qualitative investigation (abstract). Arch Dis Child Fetal Neonatal Ed. 2013;98 suppl 1:A1–A112.
Article
Google Scholar
Avelin P, Erlandsson K, Hildingsson I, Radestad I. Swedish parents’ experiences of parenthood and the need for support to siblings when a baby is stillborn. Birth. 2011;38(2):150–8.
Article
PubMed
Google Scholar
Crawley R, Lomax S, Ayers S. Recovering from stillbirth: the effects of making and sharing memories on maternal mental health. J Reprod Infant Psychol. 2013;31(2):195–207.
Article
Google Scholar
Wagner T, Higgins PG, Wallerstedt C. Perinatal death: how fathers grieve. J Perinat Educ. 1997;6(4):9–16.
Google Scholar
Cacciatore J. Effects of support groups on post traumatic stress responses in women experiencing stillbirth. OMEGA J Death Dying. 2007;55(1):71–90.
Article
Google Scholar
Begley C. ‘I cried I had to’: student midwives’ experiences of stillbirth, miscarriage and neonatal death. Evid Based Midwifery. 2003;1(1):20–6.
Google Scholar
Cartwright P, Read S. Working with practitioners to develop training in peri-natal loss and bereavement: Evaluating three workshops. Nurse Educ Pract. 2005;5(5):266–73.
Article
PubMed
Google Scholar
Curtis P. Midwives’ attendances at stillbirths: an oral history account. MIDIRS Midwifery Digest. 2000;10(4):526–30.
Google Scholar
Downe S, Kingdon C, Kennedy R, Norwell H, McLaughlin MJ, Heazell AE. Post-mortem examination after stillbirth: views of UK-based practitioners. Eur J Obstet Gynecol Reprod Biol. 2012;162(1):33–7.
Article
PubMed
Google Scholar
Farrow VA, Goldenberg RL, Fretts R, Schulkin J. Psychological impact of stillbirths on obstetricians. J Matern Fetal Neonatal Med. 2013;26(8):748–52.
Article
PubMed
Google Scholar
Hibbert G. The other side. The practicing midwife 2011;14(7):16–7.
Google Scholar
Nallen K. Midwives’ needs in relation to the provision of bereavement support to parents affected by perinatal death. Part one. MIDIRS Midwifery Digest. 2006;16(4):537–42.
Google Scholar
Puia DM, Lewis L, Beck CT. Experiences of obstetric nurses who are present for a perinatal loss. J Obstet Gynecol Neonatal Nurs. 2013;42(3):321–31.
Article
PubMed
Google Scholar
Rivaldi C TD, Rimediotti L. Lucina survey: knowledge, thoughts and emotions of Italian midwives on stillbirth management (abstract). ISA conference. 2010.
Verline AM OCO, O’Donoghue K. Factors that influence clinicians in their care of families who experience stillbirth. First candle conference. 2012.
Schmidt EB, Downe S, Heazell AEP. Parents’ perspectives after stillbirth in the UK. Arch Dis Child Fetal Neonatal Ed. 2011;96 Suppl 1:Fa124–5.
Article
Google Scholar
Redshaw MRR, Henderson J. Listening to Parents after stillbirth or the death of their baby after birth. In: Oxford: National Perinatal Epidemiology Unit; 2014.
Henley A, Kohner N. When a baby dies: the experience of late miscarriage, stillbirth and neonatal death: Routledge. 2003.
Google Scholar