Da Costa D, Lai JK, Zelkowitz P. A prospective study on the course of sleep disturbances in first-time fathers during the transition to parenthood. Infant Ment Health J. 2021;42(2):222–32.
Article
PubMed
Google Scholar
Stremler R, Sharkey KM, Wolfson AR. Postpartum Period and Early motherhood. In: Kryger M, Roth TC, Dement WC, editors. Principles and Practice of sleep medicine. 6th ed. Philadelphia: Elsevier; 2017. p. 1547–52.
Chapter
Google Scholar
Alvarez GG, Ayas NT. The impact of daily sleep duration on health: a review of the literature. Prog Cardiovasc Nurs. 2004;19(2):56–9.
Article
PubMed
Google Scholar
Gay CL, Lee KA, Lee S-Y. Sleep patterns and fatigue in new mothers and fathers. Biol Res Nurs. 2004;5(4):311–8.
Article
PubMed
Google Scholar
McGuire E. Maternal and infant sleep postpartum. Breastfeed Rev. 2013;21(2):38–41.
PubMed
Google Scholar
Bruni O, Baumgartner E, Sette S, Ancona M, Caso G, Di Cosimo ME, Mannini A, Ometto M, Pasquini A, Ulliana A, et al. Longitudinal study of sleep behavior in normal infants during the first year of life. J Clin Sleep Med. 2014;10(10):1119–27.
Article
PubMed
PubMed Central
Google Scholar
Preterm birth [http://www.who.int/news-room/fact-sheets/detail/preterm-birth] Accessed 28 Nov 2021.
Blencowe H, Cousens S, Chou D, Oestergaard M, Say L, Moller AB, Kinney M, Lawn J. Born Too Soon: The global epidemiology of 15 million preterm births. Reprod Health 2013;10(Suppl 1):2–14.
Treyvaud K, Doyle LW, Lee KJ, Roberts G, Cheong JL, Inder TE, Anderson PJ. Family functioning, burden and parenting stress 2 years after very preterm birth. Early Hum Dev. 2011;87(6):427–31.
Article
PubMed
Google Scholar
Busse M, Stromgren K, Thorngate L, Thomas KA. Parents’ responses to stress in the neonatal intensive care unit. Crit Care Nurse. 2013;33(4):52–60.
Article
PubMed
PubMed Central
Google Scholar
Lee SY, Hsu HC. Stress and health-related well-being among mothers with a low birth weight infant: The role of sleep. Soc Sci Med. 2012;74(7):958–65.
Article
PubMed
PubMed Central
Google Scholar
Lee SY, Kimble LP. Impaired sleep and well-being in mothers with low-birth-weight infants. J Obstetr Gynecol Neonatal Nurs. 2009;38(6):676–685.
Zee PC, Turek FW. Sleep and health - Everywhere and in both directions. Arch Intern Med. 2006;166(16):1686–8.
Article
PubMed
Google Scholar
Medic G, Wille M, Hemels MEH. Short- and long-term health consequences of sleep disruption. Nat Sci Sleep. 2017;9:151–61.
Article
PubMed
PubMed Central
Google Scholar
Ng YM, Voo P, Maakip I. Psychosocial factors, depression, and musculoskeletal disorders among teachers. BMC Public Health. 2019;19(1):1–10.
Article
Google Scholar
Tahmasian M, Samea F, Khazaie H, Zarei M, Kharabian Masouleh S, Hoffstaedter F, Camilleri J, Kochunov P, Yeo BTT, Eickhoff SB, et al. The interrelation of sleep and mental and physical health is anchored in grey-matter neuroanatomy and under genetic control. Commun Biol. 2020;3(1):1–13.
Google Scholar
Chow CM. Sleep and Wellbeing, Now and in the Future. Int J Environ Res Public Health. 2020;17(8):1–4.
Article
Google Scholar
Kent de Grey RG. Uchino BN, Trettevik R, Cronan S, Hogan JN: Social support and sleep: A meta-analysis. Health Psychol. 2018;37(8):787–98.
Article
PubMed
Google Scholar
Haddad S, Dennis CL, Shah PS, Stremler R. Sleep in parents of preterm infants: A systematic review. Midwifery. 2019;73:35–48.
Article
PubMed
Google Scholar
Marthinsen GN, Helseth S, Fegran L. Sleep and its relationship to health in parents of preterm infants: a scoping review. BMC Pediatr. 2018;18(1):352.
Article
PubMed
PubMed Central
Google Scholar
Gennaro S, Fehder W. Health Behaviors in Postpartum Women. Fam Community Health. 2000;22(4):16–26.
Article
Google Scholar
McMillen IC, Mulvogue HM, Kok JS, Deayton JM, Nowak R, Adamson TM. Circadian rhythms in sleep and wakefulness and in salivary melatonin and cortisol concentrations in mothers of term and preterm infants. Sleep. 1993;16(7):624–31.
Article
CAS
PubMed
Google Scholar
Bakken LN, Kim HS, Finset A, Lerdal A. Subjective sleep quality in relation to objective sleep estimates: comparison, gender differences and changes between the acute phase and the six-month follow-up after stroke. J Adv Nurs. 2014;70(3):639–50.
Article
PubMed
Google Scholar
Stone KL. Ancoli-Israel, Sonia: Actigraphy. In: Kryger M, Roth T, Dement WC, editors. Principles and practice of sleep medicine. 6th ed. Philadelphia: Elsevier; 2017. p. 1671–8.
Chapter
Google Scholar
Luyster FS: Sleep and Health. In: Encyclopedia of Behavioral Medicine. edn. Edited by Gellman MD, Turner JR. New York: Springer New York; 2013: 1799–1802.
Aili K, Astrom-Paulsson S, Stoetzer U, Svartengren M, Hillert L. Reliability of Actigraphy and Subjective Sleep Measurements in Adults: The Design of Sleep Assessments. J Clin Sleep Med. 2017;13(1):39–47.
Article
PubMed
PubMed Central
Google Scholar
Donald G. A brief summary of pilot and feasibility studies: Exploring terminology, aims, and methods. Eur J Integrative Med. 2018;24:65–70.
Article
Google Scholar
Eldridge SM, Lancaster GA, Campbell MJ, Thabane L, Hopewell S, Coleman CL, Bond CM. Defining Feasibility and Pilot Studies in Preparation for Randomised Controlled Trials: Development of a Conceptual Framework. PLoS ONE. 2016;11(3):1–22.
Article
CAS
Google Scholar
Mörelius E, Olsson E, Sahlén Helmer C, Thernström Blomqvist Y, Angelhoff C. External barriers for including parents of preterm infants in a randomised clinical trial in the neonatal intensive care unit in Sweden: a descriptive study. BMJ Open. 2020;10(12):1–5.
Article
Google Scholar
Gul RB, Ali PA. Clinical trials: the challenge of recruitment and retention of participants. J Clin Nurs. 2010;19(1–2):227–33.
Article
PubMed
Google Scholar
Montgomery-Downs HE, Insana SP, Clegg-Kraynok MM, Mancini LM. Normative longitudinal maternal sleep: the first 4 postpartum months. Am J Obstet Gynecol. 2010;203(5):1–7.
Article
Google Scholar
The Norwegian Directorate of Health: Guidance for maternity care. In. Edited by Directorate of Social Affairs and Health; 2007.
Weiss AR, Johnson NL, Berger NA, Redline S. Validity of activity-based devices to estimate sleep. J Clin Sleep Med. 2010;6(4):336–42.
Article
PubMed
PubMed Central
Google Scholar
Morin CM. Insomnia: Psychological assessment and management. New York, NY, USA: Guilford Press; 1993.
Google Scholar
Pallesen S, Bjorvatn B, Nordhus IH, Sivertsen B, Hjornevik M, Morin CM. A new scale for measuring insomnia: the Bergen Insomnia Scale. Percept Mot Skills. 2008;107(3):691–706.
Article
PubMed
Google Scholar
Bjorvatn B, Waage S, Pallesen S. The association between insomnia and bedroom habits and bedroom characteristics: an exploratory cross-sectional study of a representative sample of adults. Sleep Health J National Sleep Found. 2018;4(2):188–93.
Article
Google Scholar
Hays RD, Morales LS. The RAND-36 measure of health-related quality of life. Ann Med. 2001;33(5):350–7.
Article
CAS
PubMed
Google Scholar
Garratt AM, Stavem K. Measurement properties and normative data for the Norwegian SF-36: results from a general population survey. Health Qual Life Outcomes. 2017;15(1):51.
Article
CAS
PubMed
PubMed Central
Google Scholar
Bonsaksen T, Lerdal A, Heir T, Ekeberg O, Skogstad L, Grimholt TK, Schou-Bredal I. General self-efficacy in the Norwegian population: Differences and similarities between sociodemographic groups. Scand J Public Health. 2019;47(7):695–704.
Article
PubMed
Google Scholar
Kraft P, Røysamb E. Perceived self-efficacy in health behaviour research: Conceptualisation, measurement and correlates AU - Leganger. Anette Psychol Health. 2000;15(1):51–69.
Article
Google Scholar
Cox JL, Holden JM, Sagovsky R. Detection of postnatal depression. Development of the 10-item Edinburgh Postnatal Depression Scale. Br J Psychiatry. 1987;150:782–786.
Eberhard-Gran M, Eskild A, Tambs K, Schei B, Opjordsmoen S. The Edinburgh Postnatal Depression Scale: validation in a Norwegian community sample. Nord J Psychiatry. 2001;55(2):113–7.
Article
CAS
PubMed
Google Scholar
Broadhead WE, Gehlbach SH, de Gruy FV, Kaplan BH. The Duke-UNC Functional Social Support Questionnaire. Measurement of social support in family medicine patients. Med Care. 1988;26(7):709–723.
Isaacs KB, A. Hall L: A Psychometric Analysis of the Functional Social Support Questionnaire in Low-Income Pregnant Women. Issues Ment Health Nurs. 2011; 32(12):766–773.
Chalder T, Berelowitz G, Pawlikowska T, Watts L, Wessely S, Wright D, Wallace EP. Development of a fatigue scale. J Psychosom Res. 1993;37(2):147–53.
Article
CAS
PubMed
Google Scholar
Chilcot J, Norton S, Kelly ME, Moss-Morris R. The Chalder Fatigue Questionnaire is a valid and reliable measure of perceived fatigue severity in multiple sclerosis. Mult Scler J. 2015;22(5):677–84.
Article
Google Scholar
Loge JH, Ekeberg O, Kaasa S. Fatigue in the general Norwegian population: normative data and associations. J Psychosom Res. 1998;45(1):53–65.
Article
CAS
PubMed
Google Scholar
Fliege H, Rose M, Arck P, Walter OB, Kocalevent RD, Weber C, Klapp BF. The Perceived Stress Questionnaire (PSQ) reconsidered: validation and reference values from different clinical and healthy adult samples. Psychosom Med. 2005;67(1):78–88.
Article
PubMed
Google Scholar
Levenstein S, Prantera C, Varvo V, Scribano ML, Berto E, Luzi C, Andreoli A. Development of the perceived stress questionnaire: A new tool for psychosomatic research. J Psychosom Res. 1993;37(1):19–32.
Article
CAS
PubMed
Google Scholar
Østerås B, Sigmundsson H, Haga M. Psychometric Properties of the Perceived Stress Questionnaire (PSQ) in 15–16 Years Old Norwegian Adolescents. Front Psychol. 1850;2018(9):1–10.
Google Scholar
Patel M, Doku V, Tennakoon L. Challenges in recruitment of research participants. Adv Psychiatr Treat. 2003;9:229–38.
Article
Google Scholar
Norwegian Mother, Father and Child Cohort Study (MoBa) [https://www.fhi.no/en/studies/moba/] Accessed 28 Nov 2021.
Smith MT, McCrae CS, Cheung J, Martin JL, Harrod CG, Heald JL, Carden KA. Use of Actigraphy for the Evaluation of Sleep Disorders and Circadian Rhythm Sleep-Wake Disorders: An American Academy of Sleep Medicine Systematic Review, Meta-Analysis, and GRADE Assessment. J Clin Sleep Med. 2018;14(7):1209–30.
Article
PubMed
PubMed Central
Google Scholar
Short MA, Arora T, Gradisar M, Taheri S, Carskadon MA. How Many Sleep Diary Entries Are Needed to Reliably Estimate Adolescent Sleep? Sleep. 2017;40(3):1–10.
Article
Google Scholar
Declaration of Helsinki. Ethical Principles for Medical Research Involving Human Subjects [https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/] Accessed 28 Nov 2021.
Educational attainment of the population [https://www.ssb.no/en/statbank/table/12935/] Accessed 28 Nov 2021.
Income and wealth statistics for households [https://www.ssb.no/en/statbank/table/09903/]
Medical Birth Registry of Norway (MBRN) [https://www.fhi.no/en/hn/health-registries/medical-birth-registry-of-norway/medical-birth-registry-of-norway/]
Desjardins S, Lapierre S, Hudon C, Desgagne A. Factors involved in sleep efficiency: a population-based study of community-dwelling elderly persons. Sleep. 2019;42(5):1–9.
Article
Google Scholar
Kondo C, Takada S. The Transition of Sleep Behaviors in Twin Infants and Their Mothers in Early Infancy. Kobe J Med Sci. 2018;64(4):E126–33.
PubMed
PubMed Central
Google Scholar
Damato EG, Burant C. Sleep Patterns and Fatigue in Parents of Twins. J Obstet Gynecol Neonatal Nurs. 2008;37(6):738–49.
Article
PubMed
Google Scholar
Glass HC, Costarino AT, Stayer SA, Brett CM, Cladis F, Davis PJ. Outcomes for extremely premature infants. Anesth Analg. 2015;120(6):1337–51.
Article
PubMed
PubMed Central
Google Scholar
Arnold L, Sawyer A, Rabe H, Abbott J, Gyte G, Duley L, Ayers S. Parents’ first moments with their very preterm babies: a qualitative study. BMJ Open. 2013;3(4):1–7.
Article
Google Scholar
Bagge SR, Westgate B, Few K, Clarke P, Adlam A, Walsh J, O’Brien M. Acceptability and feasibility of collecting psychosocial data from fathers of very low birth weight infants. J Child Health Care. 2017;21(3):283–91.
Article
CAS
PubMed
Google Scholar
Epifanio MS, Genna V, De Luca C, Roccella M, La Grutta S. Paternal and Maternal Transition to Parenthood: The Risk of Postpartum Depression and Parenting Stress. Pediatr Rep. 2015;7(2):1–42.
Article
Google Scholar
Kuhlmann AKS, Dietz PM, Galavotti C, England LJ. Weight-Management Interventions for Pregnant or Postpartum Women. Am J Prev Med. 2008;34(6):523–8.
Article
PubMed
Google Scholar
Macleod M, Craigie AM, Barton KL, Treweek S, Anderson AS. WeighWell t: Recruiting and retaining postpartum women from areas of social disadvantage in a weight-loss trial–an assessment of strategies employed in the WeighWell feasibility study. Matern Child Nutr. 2013;9(3):322–31.
Article
PubMed
Google Scholar
Haste A, Adamson AJ, McColl E, Araujo-Soares V, Bell R. Problems recruiting and retaining postnatal women to a pilot randomised controlled trial of a web-delivered weight loss intervention. BMC Res Notes. 2018;11(1):1–7.
Article
CAS
Google Scholar
Gross D, Fogg L. Clinical trials in the 21st century: the case for participant-centered research. Res Nurs Health. 2001;24(6):530–9.
Article
CAS
PubMed
Google Scholar
Rochon PA, Mashari A, Cohen A, Misra A, Laxer D, Streiner DL, Clark JP, Dergal JM, Gold J. The inclusion of minority groups in clinical trials: problems of under representation and under reporting of data. Account Res. 2004;11(3–4):215–23.
Article
PubMed
Google Scholar
Baraldi E, Allodi MW, Smedler AC, Westrup B, Lowing K, Aden U. Parents’ Experiences of the First Year at Home with an Infant Born Extremely Preterm with and without Post-Discharge Intervention: Ambivalence, Loneliness, and Relationship Impact. Int J Environ Res Public Health. 2020;17(24):1–26.
Article
Google Scholar
Rockliffe L, Chorley AJ, Marlow LAV, Forster AS. It’s hard to reach the “hard-to-reach”: the challenges of recruiting people who do not access preventative healthcare services into interview studies. Int J Qual Stud Health Well-being. 2018;13(1):1479582.
Article
PubMed
PubMed Central
Google Scholar
Iribarren SJ, Ghazzawi A, Sheinfil AZ, Frasca T, Brown W 3rd, Lopez-Rios J, Rael CT, Balán IC, Crespo R, Dolezal C, et al. Mixed-Method Evaluation of Social Media-Based Tools and Traditional Strategies to Recruit High-Risk and Hard-to-Reach Populations into an HIV Prevention Intervention Study. AIDS Behav. 2018;22(1):347–57.
Article
PubMed
PubMed Central
Google Scholar
Wariyar UK, Richmond S. Morbidity and preterm delivery: importance of 100% follow-up. Lancet. 1989;1(8634):387–8.
Article
CAS
PubMed
Google Scholar
Cooper N, Lynch M. Lost to follow up: A study of nonattendance at a general paediatric outpatient clinic. Arch Dis Child. 1979;54:765–9.
Article
CAS
PubMed
PubMed Central
Google Scholar
Wolke D, Sohne B, Ohrt B, Riegel K. Follow-up of preterm children: important to document dropouts. Lancet. 1995;345(8947):447.
Article
CAS
PubMed
Google Scholar
Callanan C, Doyle LW, Rickards AL, Kelly E, Ford GW, Davis NM. Children followed with difficulty: How do they differ? J Paediatr Child Health. 2001;37:152–6.
Article
CAS
PubMed
Google Scholar
Constantine WL, Haynes CW, Spiker D, Kendall-Tackett K, Constantine NA. Recruitment and retention in a clinical trial for low birth weight, premature infants. J Dev Behav Pediatr. 1993;14(1):1–7.
Article
CAS
PubMed
Google Scholar
DeMauro SB, Bellamy SL, Fernando M, Hoffmann J, Gratton T, Schmidt B. Patient, Family, and Center-Based Factors Associated with Attrition in Neonatal Clinical Research: A Prospective Study. Neonatology. 2019;115(4):328–34.
Article
PubMed
Google Scholar
Savard I, Kilpatrick K. Tailoring research recruitment strategies to survey harder-to-reach populations: A discussion paper. J Adv Nurs. 2022;78(4):968–78.
Article
PubMed
Google Scholar
Bry A, Wigert H. Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study. BMC Psychology. 2019;7(1):1–12.
Article
Google Scholar
Feeley CA, Turner-Henson A, Christian BJ, Avis KT, Heaton K, Lozano D, Su X. Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia. J Pediatr Nurs. 2014;29(1):29–38.
Article
PubMed
Google Scholar
Lefkowitz D, Baxt C, Evans J. Prevalence and Correlates of Posttraumatic Stress and Postpartum Depression in Parents of Infants in the Neonatal Intensive Care Unit (NICU). J Clin Psychol Med Settings. 2010;17(3):230–7.
Article
PubMed
Google Scholar
Wilman E, Megone C, Oliver S, Duley L, Gyte G, Wright JM. The ethical issues regarding consent to clinical trials with pre-term or sick neonates: a systematic review (framework synthesis) of the empirical research. Trials. 2015;16(1):1–13.
Article
CAS
Google Scholar
Berger AM, Wielgus KK, Young-McCaughan S, Fischer P, Farr L, Lee KA. Methodological challenges when using actigraphy in research. J Pain Symptom Manage. 2008;36(2):191–9.
Article
PubMed
PubMed Central
Google Scholar
Hummers-Pradier E, Scheidt-Nave C, Martin H, Heinemann S, Kochen MM, Himmel W. Simply no time? Barriers to GPs’ participation in primary health care research. Fam Pract. 2008;25(2):105–12.
Article
PubMed
Google Scholar
Broyles L, Rodriguez K, Price P, Bayliss N. Overcoming Barriers to the Recruitment of Nurses as Participants in Health Care Research. Qual Health Res. 2011;21:1705–18.
Article
PubMed
Google Scholar
Cox K, McGarry J. Why patients don’t take part in cancer clinical trials: an overview of the literature. Eur J Cancer Care (Engl). 2003;12(2):114–22.
Article
CAS
Google Scholar
Davis LL, Broome ME, Cox RP. Maximizing retention in community-based clinical trials. J Nurs Scholarsh. 2002;34(1):47–53.
Article
PubMed
Google Scholar
Galea JT, Ramos K, Coit J, Friedman LE, Contreras C, Duenas M, Hernandez N, Muster C, Lecca L, Gelaye B. The Use of Wearable Technology to Objectively Measure Sleep Quality and Physical Activity Among Pregnant Women in Urban Lima, Peru: A Pilot Feasibility Study. Matern Child Health J. 2020;24(7):823–8.
Article
PubMed
Google Scholar
Dumville JC, Torgerson DJ, Hewitt CE. Reporting attrition in randomised controlled trials. BMJ (Clinical research ed). 2006;332(7547):969–71.
Article
Google Scholar
Launes J, Hokkanen L, Laasonen M, Tuulio-Henriksson A, Virta M, Lipsanen J, Tienari PJ, Michelsson K. Attrition in a 30-year follow-up of a perinatal birth risk cohort: factors change with age. PeerJ. 2014;2:1–19.
Article
Google Scholar
Teague S, Youssef GJ, Macdonald JA, Sciberras E, Shatte A, Fuller-Tyszkiewicz M, Greenwood C, McIntosh J, Olsson CA, Hutchinson D, et al. Retention strategies in longitudinal cohort studies: a systematic review and meta-analysis. BMC Med Res Methodol. 2018;18(1):1–22.
Article
Google Scholar
Newington L, Metcalfe A. Factors influencing recruitment to research: qualitative study of the experiences and perceptions of research teams. BMC Med Res Methodol. 2014;14:1–11.
Article
Google Scholar
Jones TL, Baxter MAJ, Khanduja V. A quick guide to survey research. Ann R Coll Surg Engl. 2013;95(1):5–7.
Article
CAS
PubMed
PubMed Central
Google Scholar
Polit DF, Beck CT: Essentials of nursing research : appraising evidence for nursing practice, 9th ed. edn. Philadelphia, Pa: Wolters Kluwer; 2018.
Dwyer CP, Moses A, Rogers FM, Casey D, Joyce R, Hynes SM. A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial. J Health Psychol. 2021;00(0):1–14.
Brintnall-Karabelas J, Sung S, Cadman ME, Squires C, Whorton K, Pao M. Improving recruitment in clinical trials: why eligible participants decline. J Empir Res Hum Res Ethics. 2011;6(1):69–74.
Article
PubMed
PubMed Central
Google Scholar