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Table 3 Health education and knowledge of sickle cell disease among pregnant women N = 89

From: Health education to promote knowledge about sickle cell disease and newborn screening in pregnant women: a community-based pilot study using the healthy beginning initiative

 

Before health education

n (%)

After health education

n (%)

p-value

p-value sig. level

How does someone get Sickle Cell Disease?

    

 You are born with it (hereditary)

62 (69.7)

83 (93.3)

< 0.0001

***

 You get it from a blood transfusion

6 (6.7)

6 (6.7)

  

 Don’t know

19 (21.4)

0 (0.0)

  

 Other ways

2 (2.2)

0 (0.0)

  

For someone to get sickle cell disease, both parents must have at least one sickle cell disease gene

    

 True

69 (77.5)

88 (98.9)

< 0.0001

***

 False

3 (3.4)

1 (1.1)

  

 Don’t know

17 (19.1)

0 (0.0)

  

How would someone know if they have sickle cell disease?

    

 Get their blood tested

70 (78.7)

88 (98.9)

< 0.0001

***

 Get their urine tested

1 (1.1)

0 (0.0)

  

 Don’t know

18 (20.2)

0 (0.0)

  

 Missing

0 (0.0)

1 (1.1)

  

It is important to know your Hb genotype even if you don’t have any symptoms.

    

 True

76 (85.4)

89 (100.0)

0.0003

**

  False

0 (0.0)

0 (0.0)

  

 Don’t know

13 (14.6)

0 (0.0)

  

People who have sickle cell trait have symptoms of sickle cell disease.

    

 True

48 (54.0)

42 (47.2)

< 0.0001

***

 False

18 (20.2)

45 (50.6)

  

 Don’t know

22 (24.7)

2 (2.2)

  

 Missing

1 (1.1)

0 (0.0)

  

If two people with sickle cell trait marry, the chance that their child will have sickle cell disease is:

    

 1 in 4 (25%)

21 (23.6)

80 (89.9)

< 0.0001

***

 1 in 2 (50%)

10 (11.3)

3 (3.4)

  

 1 in 1 (100%)

18 (20.2)

2 (2.2)

  

 Zero chance

0 (0.0)

1 (1.1)

  

 Don’t know

40 (44.9)

3 (3.4)

  

Have you heard of Newborn Screening?

    

 Yes

30 (33.7)

80 (89.9)

< 0.0001

***

 No

59 (66.3)

8 (9.0)

  

 Missing

0 (0.0)

1 (1.1)

  

Are you aware that sickle cell disease can be diagnosed soon after birth?

    

 Yes

39 (43.8)

83 (93.3)

< 0.0001

***

 No

49 (55.1)

6 (6.7)

  

 Missing

1 (1.1)

0 (0.0)

  

How soon after delivery should a baby get screening for sickle cell disease?

    

 Soon after birth within 6 weeks

39 (43.9)

83 (93.3)

< 0.0001

***

 When infant is 6 weeks − 6 months old

2 (2.2)

0 (0.0)

  

 After 6 months-1 years

0 (0.0)

3 (3.4)

  

 When child is 2–6 years

3 (3.4)

0 (0.0)

  

 When child is getting signs and symptoms/ sick

2 (2.2)

1 (1.1)

  

 Incomplete response (take them to hospital)

0 (0.0)

1 (1.1)

  

 Immediately after giving him or her blood test

1 (1.1)

0 (0.0)

  

 Once/ Once year

3 (3.4)

0 (0.0)

  

 Don’t know

37 (41.6)

0 (0.0)

  

 Missing

2 (2.2)

1 (1.1)

  

If a baby has sickle cell trait, what should the parent do?

    

 Counseling/ give child proper education/ let child know about it at the appropriate time

20 (22.5)

27 (30.4)

0.052

 

 Don’t know

27 (30.4)

2 (2.2)

  

 Don’t ever marry another person with the trait / AS

6 (6.7)

3 (3.4)

  

 Get the child tested in the hospital / treatment/ medication/ take care of baby

30 (33.7)

33 (37.1)

  

 Nothing/ leave baby/ no side effect

4 (4.5)

22 (24.7)

  

 Parent should do test

1 (1.1)

0 (0.0)

  

 Missing

1 (1.1)

2 (2.2)

  

If a baby has sickle cell disease, what should the parent do?

    

 They should take the baby to hospital for treatment/ follow-up with the treatment/ go to hospital for constant transfusion/ both parents to report to doctor

61 (68.6)

87 (97.8)

< 0.0001

***

 Advice the child about the health implications of it

0 (0.0)

1 (1.1)

  

 They will fight for it/ keep the child/ take care of the child/ leave it to God

3 (3.4)

0 (0.0)

  

 The parents will go for screening test

1 (1.1)

0 (0.0)

  

 Don’t know

22 (24.7)

0 (0.0)

  

 Missing

2 (2.2)

1 (1.1)

  
  1. Note. *p-value < 0.05; **p-value < 0.01; *** p-value < 0.0001
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BMC Pregnancy and Childbirth

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