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Table 2 Themes, categories, subcategories, and codes of women’s hopes

From: Hopes expressed in birth plans by women diagnosed with fetal anomalies: a qualitative study in Japan

Theme/Category (n)

Subcategory

Code

Theme 1: Hopes as women who are expecting childbirth

 Preferences during labor and giving birth

Preferences for spending time during labor and delivery

Playing music or video

Trying to go into childbirth while relaxing

Providing pain relief

Adjusting to an environment

Giving support for overcoming labor and birth

Encouraging active movements during the first stage of labor

Using aromatic oils

Companionship

The husband’s presence

Fear of being alone

Preference for husband not to be present

Own mother’s presence

Meeting and touching the baby just after giving birth

Early skin-to-skin contact

Touching the baby

Mode of delivery and medical interventions

Vaginal delivery

Minimal medical intervention

Being well-informed during labor and giving birth

Seeing the placenta

Knowing the progress or prospect of giving birth

Knowing if any medical intervention is required

 Request for maternal care

Maternal physical needs in postpartum

Putting on a pelvic belt after childbirth

Taking enough rest after giving birth

Caring for postpartum urinary incontinence

Controlling post-cesarean section pain

Request for maternal treatment plans

Refraining from having aminioreduction

Giving priority to the mother when a decision is required regarding fetal or maternal treatment

Aiming for early discharge after childbirth

Words that participants do not want medical professionals to use

Words that participants do not want medical professionals to use

Theme 2: Hopes as mothers of a baby

 Parental roles after giving birth

Spending time and being around the baby

Spending time with and being around the baby

Holding the baby

Staying with the baby in the same room

Enjoying the time alone with the baby

Spending time with the baby and keeping my pace

Doing daily care

Breastfeeding

Doing everything I can do for the baby

Bathing the baby

Changing the diapers

Clipping the baby’s nails

Memory-making

Taking the baby’s photo just after being born

Shooting a family photo with the baby just after being born

Making hand/footprints

Understanding the baby’s condition and treatments

Knowing the baby’s examination results and condition

Understanding how to cope with the baby’s symptoms after discharge

 Baby’s safety and comfort

Being born safely with strength

Born safely

Born alive

Born strong

Overcoming illnesses and treatments

Hoping that the diseased part of my baby will heal well

Wishing to get through the treatment and then go home

Requesting for the baby’s care or treatments

Making their baby as the first priority

Entrusting healthcare professionals regarding their baby’s treatments

Making a final decision on the baby’s treatments after childbirth

Refraining from taking life-prolonging treatments that are unreasonable for the baby

Theme 3: Hopes of being involved in the family needs

 Respect family members to be involved in the baby’s matters

Ensuring family time

Family visits

Spending time with family

Supporting family members in welcoming the baby

Supporting the husband to participate in giving birth

Supporting the families to participate in welcoming the baby

 Disengagement after the baby is born

Resolving not to think about anything right now

Trying not to think about it too much

Opting not to know everything before the baby is born

Refraining from knowing everything before the baby is born