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Table 1 Participant disability and birth history details

From: Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities

Pseudonym

Disability (self-reported identity or diagnosis)

Assistive device, communication aid, and/or service use

Number of children birtheda

Type and place of birth (most recent)

Primary perinatal care provider(s)b (most recent)

Ava

Sensory (Deaf)

ASL interpreters

4

Cesarean, hospital

Obstetrician

Corey

IDD (autistic) + Physical (Ehlers-Danlos syndrome)

Cane, walker, wheelchair

1

Vaginal, hospital

Obstetrician

Crystal

IDD (cognitive delay)

4

Vaginal, hospital

Midwife

Danielle

IDD (chromosomal abnormality)

2

Vaginal, hospital

Obstetrician

Emilie

Sensory (hearing loss in one ear)

2

Vaginal, home

Midwife

Garima

IDD

3

Vaginal, hospital

Midwife, obstetrician

Heidi

IDD

4

Cesarean, hospital

Obstetrician

Jasmine

IDD (fetal alcohol spectrum disorder [FASD])

Assistive communication technologies (Scribe, Kurzweil)

1

Vaginal, hospital

Obstetrician

Laura

IDD (chromosomal abnormality) + Physical (scoliosis)

2

Vaginal, hospital

Nurse practitioner, obstetrician

Leah

IDD (mild intellectual disability) + Sensory (blind in one eye)

4

Vaginal, hospital

Obstetrician

Mackenzie

Sensory (Deaf)

ASL interpreters

3

Cesarean, hospital

Midwife, obstetrician

Maria

IDD (multiple mild intellectual disabilities)

3

Vaginal, hospital

Obstetrician

Robyn

Sensory (Deaf, Usher syndrome)

Cane (in crowds), ASL interpreters, video relay service

3

Cesarean, hospital

Obstetrician

Shannon

Sensory (Deaf)

Hearing aids, ASL interpreters

1

Vaginal, hospital

Nurse practitioner, family physician

Siobhan

Sensory (blind)

White cane, screen-reader

4

Vaginal, home

Midwife

Tala

Sensory (severe hearing loss) + IDD (developmental disability)

Hearing aids

1

Vaginal, hospital

Obstetrician

Zahra

Sensory (blind)

White cane, assistive communication technologies

1

Vaginal, hospital

Obstetrician

  1. aTwo participants’ children have since died (1 was stillborn; 1 died within a week of being born)
  2. bSome participants had more than one primary perinatal care provider or shared care due to where they lived (e.g., rural or small town) and/or the nature of their pregnancy (e.g., if complications arose, if they had twins)