Table 5 Importance of Information about Different Conditions

I would want to learn about a medical condition that would result in the death of a child soon after birth.

200

 Not at all important

0 (0.00)

0 (0.00)

1 (1.3)

 Slightly/Somewhat

4 (8.0)

7 (9.3)

12 (16.0)

 Very/Extremely important

46 (92.0)

68 (90.7)

62 (82.7)

I would want to learn about a medical condition that would result in the death of a child in the first year of childhood.

200

 Not at all important

0 (0.00)

0 (0.00)

1 (1.3)

 Slightly/Somewhat

5 (10.0)

6 (8.0)

10 (13.3)

 Very/Extremely important

45 (90.0)

69 (92.0)

64 (85.3)

I would want to learn about a a medical condition that would mildly affect the quality of life of a child.

200

 Not at all important

1 (2.0) ³

3 (4.0)

3 (4.0) ¹

 Slightly/Somewhat

7 (14.0)

19 (25.3)

29 (38.7)

 Very/Extremely important

42 (84.0)

53 (70.7)

43 (57.3)

I would want to learn about a a medical condition that would moderately affect the quality of life of a child.

199

 Not at all important

1 (2.0)

1 (1.3)

2 (2.7)

 Slightly/Somewhat

4 (8.2)

16 (21.3)

18 (24.0)

 Very/Extremely important

44 (89.8)

58 (77.3)

55 (73.3)

I would want to learn about a medical condition that would severely affect the quality of life of a child.

200

 Not at all important

0 (0.00)

0 (0.00)

1 (1.3)

 Slightly/Somewhat

3 (6.0)

8 (10.7)

10 (13.3)

 Very/Extremely important

47 (94.0)

67 (89.3)

64 (85.3)

I would want to learn about a medical condition that’s full effects on the quality of life of the child will not be known until after birth.

199

 Not at all important

1 (2.0) ³

2 (2.7)

2 (2.7) ¹

 Slightly/Somewhat

5 (10.2)

19 (25.3)

24 (32.0)

 Very/Extremely important

43 (87.8)

54 (72.0)

49 (65.3)

I would want to learn about a medical condition that may develop when a child grows up and is an adult.

200

 Not at all important

1 (2.0)

4 (5.3)

5 (6.7)

 Slightly/Somewhat

13 (26.0)

25 (33.3)

31 (41.3)

 Very/Extremely important

36 (72.0)

46 (61.3)

39 (52.0)