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Table 3 Data from questionnaires assessing experiences with NIPT (van Schendel et al., 2017, Netherlands)

From: Psychological and social consequences of non-invasive prenatal testing (NIPT): a scoping review

Question

Data source

Responses and/or results

Reassurance:

‘I felt reassured by the test-result’ (Scale: not at all applicable (1) – very much applicable (5))

N = 656 women with negative NIPT results.

- 2.4% not at all applicable

- 0.9% hardly applicable

- 15.7.% somewhat applicable

- 80.9% very much applicable

Confidence:

‘I am confident that the test-result is correct’ (Scale: not at all applicable (1) – very much applicable (5))

N = 656 women with negative NIPT results.

- 0.2% not at all applicable

- 0.6% hardly applicable

- 18.3% somewhat applicable

- 80.9% very much applicable

Certainty:

‘The test result offers me sufficient certainty whether my child has a disorder’ (Scale: not at all applicable (1) – very much applicable (5))

N = 656 women with negative NIPT results.

- 0.3% not at all applicable

- 1.4% hardly applicable

- 34.0% somewhat applicable

- 64.3% very much applicable

Satisfaction with NIPT:

(Scale: not at all applicable (1) – very much applicable (4)

N = 656 women with negative NIPT results.

2.4% (n = 16) women would rather have had invasive testing than NIPT (shorter waiting time, more accurate results)

Satisfaction with NIPT:

(Scale: not at all applicable (1) – very much applicable (4)

N = 682 women with negative or positive NIPT results.

97.5% had no regret on NIPT; 28.6% would have preferred to receive results earlier.

Experience with test offer and procedure. (Scale: completely disagree (1) – completely agree (5), compressed to 3-point scale)

N = 682 women with negative or positive NIPT results.

96.1% of participating women have been glad to have been offered NIPT, 85.9% had had sufficient time to reflect on their choice.

Waiting time for test results. (Scale: way too long (1) – way too short (5))

N = 682 women with negative or positive NIPT results.

Reported waiting time until NIPT result: mean = 15 days (range 5–32 days). Waiting time was considered (much) too long by 68.5% of women, for 31.5% it was neither too long nor too short. A waiting time of ≤10 days was acceptable for most women, longer was considered too long by the majority of women.