Unit of analysis | Codes | Sub-category | Main category |
---|---|---|---|
You did not get the explanation without asking; what? How? You just need to sit down with a doctor…to go through the disease, causes and treatment plans. | Desire a clear and complete picture of the situation | To be informed/not informed | The professionals could have made a difference |
You are desperately searching for each straw that can testify the improvement (in woman´s condition) and when you hear that "you may consider yourself chronically ill because now it has gone so far and you have not shown any improvement" | The way of communication is crucial | ||
Will she die? Be disabled? Will she survive? You need a quick conversation with the doctor to avoid frustration | Several unpleasant thoughts appear in your mind and you need quick information | ||
I think they could have facilitated so I would have been more prepared to help my partner | Understanding the situation facilitates security | To feel secure/ insecure | |
The doctors said it looks good but a nurse said the women rarely get well from this | Incorrect information creates insecurity | ||
The main problem was the lack of collaboration between different specialties that led to the missing or erroneous drug administration. | Coordination between specialties is necessary to secure patient safety | ||
It almost felt that it was a hassle for the staff at the ward that she was there and I was there too with her | Not feeling welcome created feelings of insecurity | ||
She was very serious and was close to death… It felt safe because she was surrounded by a good team | A whole team of people around her conveyed security | ||
They (neonatal ward) did not ask me as father about anything, then you really had to try to drag their attention. | Had to make great efforts to become a part of own babies’ care | To feel visible/invisible | |
You accept yourself like a spectator. Then you realize that, ´I'm also a human, not robot, I also have my needs. Talk to me too. I also have own feelings´. | Desire to be visible | ||
At the ward it was strenuous. I had to go out to get my own food even though I was there to take care of the child | Invisible carer | ||
Perhaps they (healthcare professionals) have had targeted action against the couple together. She felt I was not there for her, but I think I supported her. This leaves their marks as well. | Experience of being invisible from the partner | ||
There was both fear but also joy over the new born baby. Everything was up and down, It was very difficult situation. | We had looked forward to having joyous arrival of the baby but it was not as expected | Wish that it had been different | |
Did not have time to think about your own health. Taking care of two children, work, shopping, school/ kindergarten and making food. | Don´t have time to think about own health. Trying to balance between different priorities | ||
You feel rejected and it was difficult. They didn´t pay attention to whatever you say (about woman not feeling well). In the end you give up. There was no point to nag. | Wish adequate encounter with healthcare professional |