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Table 2 HIV infected pregnant and breastfeeding women’s experiences regarding barriers and facilitators of initiation and adherence to lifelong ART

From: Facilitators and barriers to uptake and adherence to lifelong antiretroviral therapy among HIV infected pregnant women in Uganda: a qualitative study

Theme 1: ART Initiation

Sub-themes

Good ART adherers

Poor ART adherers

Delayed ART acceptors

Women’s experience during ART initiation

-Started ART the same day they tested HIV +, with little effort on counselling and health education

-

-Were supposed to start ART the same day they tested HIV+

Facilitators for initiating ART

-Desire to have an HIV-free baby

-Receipt of HIV negative results/desire to have an HIV free baby

-Desire to remain healthy and live longer to be able to take care of their children

-

-Fear to be recognized as a person living with HIV because of the emaciation

-

-Health workers motivated

-

-

Barriers to ART initiation

-HIV –related stigma

-Fear of domestic violence and being abandoned by the spouse

-Fear of the big size of the tablets

-Fear of the lengthy of the treatment (lifelong)

-

-Fear of dying due to the belief that poor adherence to ART kills

Theme 2: ART Adherence

Sub-theme

Level of adherence

-Self-drive to adhere to their ART medication

-Experiencing moments of non-adherence due to missing doses or clinic appointments

-

- Stopped taking ART for some time

-

Facilitators to ART adherence

-Family support, especially from the spouse

- Family support

-

-Peer support by attending family support groups (FSGs)

-Receipt of HIV negative results for the baby

Barriers to ART adherence

-Failure to disclose to spouse

-Drug related factors.i.e., size and the side effects

-HIV-related stigma

-Forgetting to take their medication

 

-Travelling away from home

 

-Lack of transport to travel to the health facility to pick drugs

-

-Lack of counselling and health education about the treatment