From: Women’s experiences of a diagnosis of gestational diabetes mellitus: a systematic review
Author/Date/country | Aim of study | Method of data collection/point of data collection | Conceptual basis underlying the study (e.g. thematic analysis, grounded theory) | Participants/Recruitment/N/Population description |
---|---|---|---|---|
Studies collecting data during pregnancy | ||||
Carolan/2013 [29] Australia | To understand the experiences of women self-managing GDM | Phone interview, face-to-face interview and focus group | Thematic analysis | Pregnant women with a diagnosis of GDM/purposive sample/ N = 15 Caucasian, Asian, South Asian, Indian and Arabic |
Carolan-Olah et al./2017 [12] Australia | To explore the experiences of a group of Hispanic women of Mexican origin who had been diagnosed with GDM | Semi-structured interviews | Thematic analysis | Pregnant Hispanic women with a diagnosis of GDM/convenience sample/ N = 18 Hispanic women of Mexican origin |
Doran/ 2008 [30] Australia | To explore lifestyle changes during pregnancy and post-partum with women who had experienced a pregnancy complicated by GDM | Interviews | Thematic analysis | Pregnant women with GDM and women who has accessed centres for GDM management within the past 18 months/purposive sample/ N = 38 Pacific Islanders |
Hjelm et al./2005 [41] Sweden | The aim of the present study was to compare beliefs about health and illness in women with GDM born in Swedish and in the Middle East | Semi-structured interviews | Thematic analysis | Pregnant women with GDM Interviews conducted at weeks 34–38/consecutive sample/ N = 27 (Sweden = 13) Swedish/Middle Eastern |
Persson et al./2010 [13] Sweden | To describe pregnant women’s experiences of acquiring and living with GDM during pregnancy | Semi-structured interviews | Grounded theory | Pregnant women with GDM/convenience sample N = 10 Swedish |
Kaptein et al./2015 [45] Canada | To gain insight into the reactions and experiences of women from multiple ethnic background diagnosed with GDM | Semi-structured telephone interviews | Thematic analysis | Pregnant women with a diagnosis of GDM/consecutive sample/ N = 19 Non-Caucasian (79%) |
Trutnovsky et al./2012 [59] Austria | To explore concerns, treatment motivation, mood state, QoL, and treatment satisfaction of women treated for GDM. | Semi-structured interviews and survey | Thematic analysis | Pregnant women with GDM/convenience sample/ N = 45 Caucasian |
Wah et al./2018 [60] Australia | To explore the understanding and self-management experiences of GDM among Chinese migrants | Semi-structured face-to-face interviews | Thematic analysis | Pregnant migrants of China ethnicity residing in Australia with a diagnosis of GDM/convenience sample/ N = 18 Chinese |
Salomon et Soares/2004 [55] Portugal | To understand how gestational diabetes patients experience the impact of this diagnosis during pregnancy and of significance they attribute to the disease | Semi-structured interviews | Content analysis | Pregnant women with a diagnosis of GDM/unclear N = 9 Not reported |
Hui et al./2014 [44] Canada | To explore the stress and anxiety experienced during dietary management for women with GDM | Food choice map semi structured interview Interviews conducted at 26–28 weeks gestation | Not specifically reported, described as thematic Themes | Pregnant women with diagnosis of GDM/purposive sample/ N = 30 Caucasian, Asian, African, and Aboriginal |
Hjelm et al. 2012 [42] Sweden | Explore beliefs about health and illness in women with gestational diabetes living in Sweden and born in Sweden or Africa | Semi-structured interviews Interviews conducted at weeks 34–38 | Categories with description extract | Pregnant women with a diagnosis of GDM/consecutive sample/ N = 23 (N = 13, Sweden) Swedish/African |
Hjelm et al. 2008 [43] Sweden | To explore beliefs about health, illness and health care in women with gestational diabetes mellitus (GDM) managed in two different organisations based on diabetology or obstetrics | Semi-structured interviews Interviews conducted at gestational weeks 34–38 | Thematic analysis | Women with a diagnosis of GDM/consecutive sample/ N = 23 Swedish/African |
Hirst et al. 2012 [37] Vietnam | To determine attitudes and health behaviours of pregnant women with GDM in Vietnam | Focus groups | Thematic analysis | Women with a diagnosis of GDM/purposive sample (Women sampled at gestational ages 28–38 weeks) N = 34 Vietnamese |
Han et al. 2015 [36] Australia | To explore women’s experiences after being diagnosed with borderline GDM | Semi-structured interviews | Content analysis Categories | Women with a diagnosis of borderline GDM Borderline GDM as a positive 50 g OGCT (1 h venous plasma glucose ≥7.8 mmol/L) followed by abnormal oral75g OGTT (fasting venous plasma glucose < 5.5 mmol/L and a 2 h glucose < 7.8 mmol/L) Eligible if they were participants in the IDEAL study/purposive sample/ N = 22 Caucasian and Asian |
Ge, Wikby et al. 2016 [35] Sweden | To explore beliefs about illness and health and self-care behaviour among urban Chinese women | Semi-structured interviews | Content analysis Categories | Pregnant women with diagnosis of GDM, 34-38th gestational weeks/purposive sample/ N = 17 Chinese |
Ge, Albin et al. 2016 [34] Sweden | To explore beliefs about health and illness and health-related behaviours among Chinese women with GDM in a Chinese sociocultural context. | Semi-structured interviews | Content analysis Categories | Pregnant women with a diagnosis of GDM, 34-38th gestational weeks/purposive sample/ N = 15 Chinese |
Bandyopadhyay et al. 2011 [28] Australia | To explore the experiences and understanding of South Asian women after a diagnosis of GDM | Face-to-face interviews | Not specifically reported, described as thematic analysis Themes | South Asian women diagnosed with GDM/convenience sample/ N = 17 South Asian |
Araujo et al./2013 [26] Brazil | To understand the significance of the experiences of women with gestational diabetes mellitus | Open interviews and participant drawings 4 women in 1st trimester, 3 in 2nd trimester & 3 in 3rd trimester | Not specifically reported, described as thematic analysis | Women with GDM diagnosis/convenience sample/ N = 12 South American |
Evan et Brien 2005 [12] Canada | To gain an in-depth understanding of GDM as experienced by pregnant women | Interviews Interviews conducted prior to delivery and 6–8 weeks postpartum | Thematic analysis | Women with GDM diagnosis/purposive sample/ N = 12 Caucasian |
Studies collecting data within the 1st 12 months post-natal | ||||
Bandyopadhyay et al./2015 [27] Australia | To capture in-depth exploration of the experiences and perspectives on postpartum glucose tolerance test screening of South Asian women diagnosed with GDM | Interviews Interviews were conducted antenatally after diagnosis, after birth, 9 weeks to 52 weeks | Thematic analysis | South Asian women with diagnosis of GDM/convenience sample/ N = 40 South Asian |
Draffin et al./2016 [19] United Kingdom | To explore the concerns, needs and knowledge of women diagnosed with GDM | Focus groups | Thematic analysis | Pregnant women with a diagnosis of GDM or a history of GDM within past 12 months/convenience sample/ N = 19 White, Black African, Pakistani Latin American, Bangladeshi, Indian |
Doran et Davis 2010 [31] Tongan | To explore GDM in Tonga, with women who experienced GDM and health professionals who worked in the GDM/diabetes area | Semi-structured face to face interviews | Not specifically reported, described as thematic analysis Themes | Women who had experienced GDM in the previous 12 months /unclear/ N = 11 Pacific Islanders |
Figueroa Gray et al./2017 [33] USA | To foreground women’s experience with insulin and oral hypoglycemic agents. | Focus group | Thematic analysis | Women with GDM history and completed at least one prescription for insulin or oral hypoglycaemic medication during pregnancy within past 3 years/purposive sample/ N = 16 Caucasian, African American, Asian, Hispanic or Latina |
Hjelm et al. 2009 [40] Sweden | To explore beliefs about health and illness 3 month postpartum in women born in Sweden and the Middle East, and to study whether they perceive gestational diabetes mellitus as a prediabetic condition | Interviews | Headings and descriptions Divided into Middle-Eastern born and Swedish born women | Women 3 months postpartum who had previously had GDM /consecutive sample/ N = 27 Swedish and Middle Eastern |
Hjelm et al./2012 [42] Sweden | To explore the development over time of belief about health, illness and health care in migrant women with gestational diabetes born in the Middle East and living in Sweden | Semi-structured interviews Interviews conducted at weeks 34–38, three and 14 months after delivery | Content analysis | Middle Eastern women with a diagnosis of GDM/consecutive sample/ N = 14 Swedish and Middle Eastern |
Hjelm et al. 2018 [39] Sweden | To explore the development over time, during and after pregnancy, of beliefs about health, illness and healthcare in migrant women with GDM born in Africa living in Sweden | Semi-structured Interviews conducted in gestational weeks 34–38 and 3 and 14 months after delivery | Framework analysis using the Health Belief Model | Women with a diagnosis of GDM/convenience sample/ N = 9 African |
Kilgour et al./2015 [46] Australia | To explore and assess women’s communication experiences of postnatal GDM follow-up | Interviews Interviews at 12–16 weeks after birth | Thematic analysis | Women with GDM diagnosis/“theoretical sample”/ N = 13 Caucasian, Asian and Indian |
Lawson et Rajaram/1994 [47] USA | To explore the meaning women attach to GDM | Semi-structured interviews Interviews once prenatally and again at 6 weeks | Thematic analysis | Women with diagnosis of GDM/purposive sample/ N = 17 Caucasian, Black and Asian-American |
Neufeld/2011 [49] Canada | To describe how aboriginal women in an urban setting perceive dietary treatment recommendations associated with GDM | Interviews | Thematic analysis | Aboriginal women with GDM or a previous diagnosis of GDM within past 5 years/convenience sample/ N = 29 Aboriginal |
Svensson et al./2018 [56] Denmark | To examine how Danish women with a history of GDM experience the transition from a GDM-affected pregnancy to the postpartum period | Interviews Interviews within 3–5 months after delivery | Content analysis Themes | Women diagnosed with GDM/convenience sample/ N = 6 Caucasian |
Tang et al./2015 [57] USA | To gain insight of Hispanic and African-American women’s views on prevention of T2DM after GDM. | Semi-structured interviews | Thematic analysis | Women with a history of GDM (within 12 months of delivery at the time of initial contact)/purposive sample/ N = 23 African-American |
Whitty-Rogers et al./2016 [61] Canada | To explore Mi’kmaq women’s experiences with GDM. | Conversational interviews | Hermeneutic phenomenology Themes | Mi’kmaq women with history of GDM/purposive and snowballing sample/ N = 9 Aboriginal |
Studies collecting data at follow up screening for Type II diabetes | ||||
Abraham et Wilk/2014 [25] USA | To explore the lived experiences of women in rural communities with GDM and potentially gain insight into the low reported return rates for PPG testing | Semi-structured interviews | Phenomenological approach Themes | Women with a history of GDM in the last 2 to 5 years/purposive and snowballing sample/ N = 10 Caucasian |
Eades et al./2018 [32] UK | To explore experiences, knowledge and perceptions of women with GDM to inform the design of interventions to prevent or delay Type 2 diabetes | Semi-structured interviews | Theoretical framework – Self-Regulation Themes | Women with history of GDM diagnosis, within 1-year post delivery/convenience sample/ N = 16 Caucasian, Asian, Black and African |
Nielsen et al./2015 [50] Denmark | To improve our understanding of how women with gestational diabetes experience the treatment and care offered by a regional health service. To understand how the women’s experiences influenced their subsequent participation in follow-up screening. | Semi-structured interviews | Thematic analysis | Women with a previous diagnosis of GDM within 1–2 years after birth/convenience sample/ N = 7 Caucasian and Asian |
Parsons et al./2018 [51] UK | To describe the experiences of women from a demographically diverse population of their GDM and GDM care, to help inform healthcare delivery for women both during and after pregnancy | Interviews and focus groups | Framework analysisThemes | Women with a previous diagnosis of GDM (within past 5 years)/purposive sample/ N = 50 Black, Caucasian, and Asian |
Razee et al./2010 [54] Australia | To explore the beliefs, attitudes, social support, environmental influences and other factors related to diabetes risk behaviours among Arabic, Cantonese/Mandarin, and English speaking women with recent GDM | Semi-structured interviews | Not specifically reported, described as thematic analysis | Women who had completed a GDM pregnancy in the previous 6–36 months/purposive sample/ N = 57 Middle Eastern, Chinese and White Australian |
Rafii et al./2017 [53] Iran | To understand Iranian women’s experiences in diabetes screening after childbirth | Semi-structured interviews Interviews at 6–21 months postpartum | Grounded theory methodology Themes and sub-themes | Women with previous GDM diagnosis /purposive sample/ N = 22 Asian |
Tierney et al./2015 [58] Ireland | To assess the lifestyle behaviours undertaken by a group of women both during and after their GDM pregnancy | Semi-structured interview | Thematic analysis | Women with a history of GDM in the previous 3.6–6.6 years/convenience sample/ N = 13 Not reported |
Pennington et al./2017 [52] Australia | To explore the views of GPs and women who have had GDM | Semi-structured interviews | Content analysis | Women with a history of GDM/purposive sample/ Timeframe not reported N = 16 Not reported |
Lie et al./2013 [48] United Kingdom | To explore factors influencing post-natal health behaviours following the experience of gestational diabetes | Semi-structured interviews | Framework analysis | Women with a history of GDM within the last 2 years/purposive sample/ N = 37 Caucasian and non- Caucasian |