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Table 1 Decision aid content

From: Improving women’s knowledge about prenatal screening in the era of non-invasive prenatal testing for Down syndrome – development and acceptability of a low literacy decision aid

Component/feature Description
General description • Paper-based, 36-page, A5 booklet.
• Written and quantitative information about prenatal screening (including NIPT) and diagnostic testing for Down syndrome.
Theoretical Framework • Systemic functional linguistics were used to structure the information (Clerehan, Buchbinder et al. 2005).
Visual, format and design aspects • Plain language, headings, bullet points, and white space were used.
• Colour coding was consistently used to distinguish between screening and diagnostic tests.
• A timeline was included to outline the timing of the different screening tests. Visual illustrations were used throughout the booklet to support key concepts and break up the text.
• The image on the front cover was designed to set the scene for the booklet – a women contemplating the options.
• Medical diagrams were presented of diagnostic testing.
Key factual content • The difference between screening and diagnostic tests.
• The chromosome conditions screened for.
• The different types of screening tests (first-trimester, second-trimester and NIPT).
• Accuracy of screening testing in detecting Down syndrome.
• Diagnostic testing.
• Options available after a diagnosis of Down syndrome.
• Personal worksheet to help women/ couples decide about prenatal screening (Fig. 2).
Presentation of quantitative information • Systematic 100-dot diagrams (see Fig. 1) used to convey sensitivity (rate at which women carrying babies with Down syndrome are detected) of the Combined First Trimester screening, Second Trimester Maternal Serum Screening and Non-Invasive Prenatal testing.