Table 1 The different components of the decision aid with headings, sub headings and short descriptions of the content

1. About fetal screening and diagnostics

Facts

• What tests are offered

• What time in pregnancy the different tests are performed

• What information the tests can provide, with separate pop-up windows that explain concepts such as ‘ultrasonographic soft markers’ and ‘the most common trisomies’

• Any risks associated with the tests and what the costs are

• An Internet link to the official website of the fetal medicine unit at Uppsala University Hospital

2. Likelihood of anomalies

What do the results mean?

• Examples on how the risk figure 1 in 200 can be described in words and images

• A chart that shows the proportion of DS fetuses related to women’s age

• Information and examples on what clinicians express as high and low risk for DS, and what that equals in real figures

• A prompt to the user of the DA to assess the chance of the fetus not having DS at the women’s own age

3. Expectant parents’ stories

Four couple’s choices

• Four different fictional stories in 150–200 words on how the couples think, their choices, and possible outcome of their choices

4. Worksheets

What is valuable to you?

• Sets of statements regarding personal opinions on what high or low risk for DS means, and their value of receiving information on one’s personal risk for carrying a fetus with DS

• Series of claims on personal values that users are requested to take a stand on to promote awareness of one’s own values, using Ottawa decision weight scale [36]