| Before health education n (%) | After health education n (%) | p-value | p-value sig. level |
---|---|---|---|---|
How does someone get Sickle Cell Disease? | Â | Â | Â | Â |
 You are born with it (hereditary) | 62 (69.7) | 83 (93.3) | < 0.0001 | *** |
 You get it from a blood transfusion | 6 (6.7) | 6 (6.7) |  |  |
 Don’t know | 19 (21.4) | 0 (0.0) |  |  |
 Other ways | 2 (2.2) | 0 (0.0) |  |  |
For someone to get sickle cell disease, both parents must have at least one sickle cell disease gene | Â | Â | Â | Â |
 True | 69 (77.5) | 88 (98.9) | < 0.0001 | *** |
 False | 3 (3.4) | 1 (1.1) |  |  |
 Don’t know | 17 (19.1) | 0 (0.0) |  |  |
How would someone know if they have sickle cell disease? | Â | Â | Â | Â |
 Get their blood tested | 70 (78.7) | 88 (98.9) | < 0.0001 | *** |
 Get their urine tested | 1 (1.1) | 0 (0.0) |  |  |
 Don’t know | 18 (20.2) | 0 (0.0) |  |  |
 Missing | 0 (0.0) | 1 (1.1) |  |  |
It is important to know your Hb genotype even if you don’t have any symptoms. |  |  |  |  |
 True | 76 (85.4) | 89 (100.0) | 0.0003 | ** |
  False | 0 (0.0) | 0 (0.0) |  |  |
 Don’t know | 13 (14.6) | 0 (0.0) |  |  |
People who have sickle cell trait have symptoms of sickle cell disease. | Â | Â | Â | Â |
 True | 48 (54.0) | 42 (47.2) | < 0.0001 | *** |
 False | 18 (20.2) | 45 (50.6) |  |  |
 Don’t know | 22 (24.7) | 2 (2.2) |  |  |
 Missing | 1 (1.1) | 0 (0.0) |  |  |
If two people with sickle cell trait marry, the chance that their child will have sickle cell disease is: | Â | Â | Â | Â |
 1 in 4 (25%) | 21 (23.6) | 80 (89.9) | < 0.0001 | *** |
 1 in 2 (50%) | 10 (11.3) | 3 (3.4) |  |  |
 1 in 1 (100%) | 18 (20.2) | 2 (2.2) |  |  |
 Zero chance | 0 (0.0) | 1 (1.1) |  |  |
 Don’t know | 40 (44.9) | 3 (3.4) |  |  |
Have you heard of Newborn Screening? | Â | Â | Â | Â |
 Yes | 30 (33.7) | 80 (89.9) | < 0.0001 | *** |
 No | 59 (66.3) | 8 (9.0) |  |  |
 Missing | 0 (0.0) | 1 (1.1) |  |  |
Are you aware that sickle cell disease can be diagnosed soon after birth? | Â | Â | Â | Â |
 Yes | 39 (43.8) | 83 (93.3) | < 0.0001 | *** |
 No | 49 (55.1) | 6 (6.7) |  |  |
 Missing | 1 (1.1) | 0 (0.0) |  |  |
How soon after delivery should a baby get screening for sickle cell disease? | Â | Â | Â | Â |
 Soon after birth within 6 weeks | 39 (43.9) | 83 (93.3) | < 0.0001 | *** |
 When infant is 6 weeks − 6 months old | 2 (2.2) | 0 (0.0) |  |  |
 After 6 months-1 years | 0 (0.0) | 3 (3.4) |  |  |
 When child is 2–6 years | 3 (3.4) | 0 (0.0) |  |  |
 When child is getting signs and symptoms/ sick | 2 (2.2) | 1 (1.1) |  |  |
 Incomplete response (take them to hospital) | 0 (0.0) | 1 (1.1) |  |  |
 Immediately after giving him or her blood test | 1 (1.1) | 0 (0.0) |  |  |
 Once/ Once year | 3 (3.4) | 0 (0.0) |  |  |
 Don’t know | 37 (41.6) | 0 (0.0) |  |  |
 Missing | 2 (2.2) | 1 (1.1) |  |  |
If a baby has sickle cell trait, what should the parent do? | Â | Â | Â | Â |
 Counseling/ give child proper education/ let child know about it at the appropriate time | 20 (22.5) | 27 (30.4) | 0.052 |  |
 Don’t know | 27 (30.4) | 2 (2.2) |  |  |
 Don’t ever marry another person with the trait / AS | 6 (6.7) | 3 (3.4) |  |  |
 Get the child tested in the hospital / treatment/ medication/ take care of baby | 30 (33.7) | 33 (37.1) |  |  |
 Nothing/ leave baby/ no side effect | 4 (4.5) | 22 (24.7) |  |  |
 Parent should do test | 1 (1.1) | 0 (0.0) |  |  |
 Missing | 1 (1.1) | 2 (2.2) |  |  |
If a baby has sickle cell disease, what should the parent do? | Â | Â | Â | Â |
 They should take the baby to hospital for treatment/ follow-up with the treatment/ go to hospital for constant transfusion/ both parents to report to doctor | 61 (68.6) | 87 (97.8) | < 0.0001 | *** |
 Advice the child about the health implications of it | 0 (0.0) | 1 (1.1) |  |  |
 They will fight for it/ keep the child/ take care of the child/ leave it to God | 3 (3.4) | 0 (0.0) |  |  |
 The parents will go for screening test | 1 (1.1) | 0 (0.0) |  |  |
 Don’t know | 22 (24.7) | 0 (0.0) |  |  |
 Missing | 2 (2.2) | 1 (1.1) |  |  |